Welcome to your Aurinia Alliance® community
In addition to getting connected with your Nurse Case Manager, you now have access to all of the resources Aurinia Alliance offers.
Suriya,
started treatment 2021
The Welcome Kit
The Welcome Kit from your dedicated Nurse Case Manager has resources to help you get started with LUPKYNIS®. Inside you'll find:
A Welcome Brochure
With helpful information about taking LUPKYNIS and how to get support from Aurinia Alliance.
An Instructional Card
To help you open your LUPKYNIS blister packs.
A LUPKYNIS Medication Carrier
Designed by someone living with lupus nephritis, so you can stylishly store and carry your medication. It's water resistant and has a pocket to store important information.
An Aurinia Alliance Magnet and Dry Erase Marker
Where you can track your daily doses and jot down appointments and reminders.
Doctor Discussion Guide
Feel confident asking your doctor questions at your next appointment.
Our downloadable doctor discussion guide can help you start the conversation.
See how other people are living with lupus nephritis and taking LUPKYNIS
"Getting questions answered would've really been difficult without the extra help from my Nurse Case Manager."
- Jennifer, started treatment in 2021
LEARN MORESee how other people are living with lupus nephritis and taking LUPKYNIS
A few reminders for taking LUPKYNIS
Only remove the capsules you are about to take. Leave the others sealed to help maintain the quality of the capsules.
Capsules should be swallowed whole. Do not break, crush, chew or dissolve LUPKYNIS capsules.
Take LUPKYNIS 8-12 hours apart. Make sure to take it on an empty stomach, either 1 hour before or 2 hours after a meal, and as close to 12 hours between doses as possible.
Missed a dose? Take it as soon as possible within 4 hours of the missed dose. If more than 4 hours have passed, wait to take the next scheduled dose. Do not double up doses to make up for a missed dose.
Frequently asked questions
How does LUPKYNIS work?
LUPKYNIS works to calm your immune system, which is causing your body to attack the cells of your kidneys. It helps reduce inflammation and protect specific cells of the kidneys to keep them functioning.
What are the most common side effects while taking LUPKYNIS?
Side effects included diarrhea, headache, cough, urinary tract infection, stomach pain, heartburn, and loss of hair (alopecia). These are not all the possible side effects of LUPKYNIS. Talk to your doctor about any side effects you may be experiencing. Please see the full list of possible side effects in the Prescribing Information, including Boxed Warning, and Medication Guide (Guía del medicamento).
How to open your LUPKYNIS blister pack
Unfold the wallet and start with one panel on the teal perforated cardboard side.
Press down at the edge of the perforated cardboard circle to break through the cardboard.
Press the foil up from behind the cardboard circle to push the capsule forward. Peel the cardboard circle back and remove the capsule.
Only take the dose that has been prescribed by your doctor.
"I just really appreciate that my case manager spends the time to explain everything to me regarding the medication and the whole process of getting started on a new medication. I also like that she checks in with me on a regular basis."
– Staci, started treatment 2021
"I'm here to help guide you through your journey. I love being able to educate and involve you in your care as much as possible, and advocate for you and giving you a voice when it matters most."
– Brooke H., RN Nurse Case Manager
You're not in this alone
Connect with a lupus nephritis mentor
Connect with a lupus nephritis mentor
Lupus Nephritis Peer Connect™ is a mentor program that allows you to speak with someone who is also living with lupus nephritis and who might understand what you're going through. Our peer mentors volunteer for one-on-one calls to answer your questions, offer encouragement, and share their own personal experiences with lupus nephritis and treatment with LUPKYNIS.
REQUEST A MENTORConnect with organizations
Connect with organizations
From raising awareness about lupus nephritis to helping you feel connected and supported by others who are fighting the same fight, joining peer communities and support networks is a great way to get involved. You can join local and regional organizations in your area, as well as national groups that serve communities all over the country.
FIND A COMMUNITYWhat is LUPKYNIS® (voclosporin)?
LUPKYNIS is a prescription medicine used with other medicines to treat adults with active lupus nephritis. LUPKYNIS should not be taken with a medicine called cyclophosphamide. Talk with your healthcare provider if you are not sure if you take this medicine.
Please see Prescribing Information, including Boxed Warning, and Medication Guide (Guía del medicamento) for LUPKYNIS.
Important Safety Information
LUPKYNIS® (voclosporin) can cause serious side effects, including:
- Increased risk of cancer. People who take LUPKYNIS have an increased risk of getting some kinds of cancer, including skin and lymph gland cancer (lymphoma). Limit and avoid exposure to sunlight and UV light such as tanning machines. Wear protective clothing and use a sunscreen.
- Increased risk of infection. LUPKYNIS is a medicine that affects your immune system. LUPKYNIS can lower the ability of your immune system to fight infections. Serious infections can happen in people taking LUPKYNIS that can lead to hospitalizations and can cause death. Call your healthcare provider right away if you have symptoms of an infection such as fever, sweats or chills, cough or flu-like symptoms, muscle aches, or warm, red, or painful areas on your skin.
What is LUPKYNIS® (voclosporin)?
LUPKYNIS is a prescription medicine used with other medicines to treat adults with active lupus nephritis. LUPKYNIS should not be taken with a medicine called cyclophosphamide. Talk with your healthcare provider if you are not sure if you take this medicine.
Please see Prescribing Information, including Boxed Warning, and Medication Guide (Guía del medicamento) for LUPKYNIS.
Important Safety Information
LUPKYNIS® (voclosporin) can cause serious side effects, including:
- Increased risk of cancer. People who take LUPKYNIS have an increased risk of getting some kinds of cancer, including skin and lymph gland cancer (lymphoma). Limit and avoid exposure to sunlight and UV light such as tanning machines. Wear protective clothing and use a sunscreen.
- Increased risk of infection. LUPKYNIS is a medicine that affects your immune system. LUPKYNIS can lower the ability of your immune system to fight infections. Serious infections can happen in people taking LUPKYNIS that can lead to hospitalizations and can cause death. Call your healthcare provider right away if you have symptoms of an infection such as fever, sweats or chills, cough or flu-like symptoms, muscle aches, or warm, red, or painful areas on your skin.
Do not take LUPKYNIS with medicines known as strong CYP3A4 inhibitors such as ketoconazole, itraconazole, and clarithromycin, or if you are allergic to any of the ingredients in LUPKYNIS. You should not eat grapefruit or drink grapefruit juice while taking LUPKYNIS.
Before you use LUPKYNIS, tell your healthcare provider about all your medical conditions, including if you:
- Plan to receive any vaccines. You should not receive any live vaccines during treatment with LUPKYNIS. Other vaccines may not work as well during treatment with LUPKYNIS.
- Have or have had liver, kidney, or heart problems.
- Have high blood pressure.
- Are pregnant or plan to become pregnant or are breastfeeding or plan to breastfeed when taking LUPKYNIS. When taking LUPKYNIS in combination with mycophenolate mofetil, read the Medication Guide for mycophenolate mofetil for important pregnancy information. These medicines can harm your unborn or breastfed baby.
Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. LUPKYNIS may affect the way other medicines work, and other medicines may affect how LUPKYNIS works.
LUPKYNIS may cause serious side effects, including:
Kidney problems. Kidney problems are common side effects of LUPKYNIS and may be serious. Your healthcare provider may do certain tests to check your kidney function while you take LUPKYNIS.
High blood pressure. High blood pressure is a common side effect of LUPKYNIS and may be serious. Your healthcare provider will monitor your blood pressure while you take LUPKYNIS and may ask you to check your blood pressure at home.
Nervous system problems. Nervous system problems are a common side effect of LUPKYNIS and may be serious. Call your healthcare provider or go to the nearest hospital emergency room right away if you have any of these symptoms while taking LUPKYNIS:
- confusion
- changes in alertness
- muscle tremors
- numbness and tingling
- headache
- seizures
- vision changes
High levels of potassium in your blood. Your healthcare provider may do certain tests to check your potassium levels while you take LUPKYNIS.
A serious heart rhythm problem (QT prolongation).
Severe low red blood cell count (anemia). Your healthcare provider may check your labs while using LUPKYNIS.
The most common side effects of LUPKYNIS are diarrhea, headache, cough, urinary tract infection, stomach pain, heartburn, and loss of hair (alopecia).
These are not all the possible side effects of LUPKYNIS. For more information, ask your healthcare provider. You may report side effects to FDA at 1-800-FDA-1088. You may also report side effects to www.fda.gov/medwatch.